Since 1977, serving the people of North Carolina
HNC/HSC World Hemophilia Day
Join Hemophilia of North Carolina (HNC) along with Hemophilia of South Carolina (HSC) on Tuesday, April 16, for a celebration of World Hemophilia Day (WHD). This year, the World Federation of Hemophilia (WFH) is focusing on raising awareness about bleeding disorders around the world. To help us in that process we will have a presentation led by Shelley Gerson. A native of Michigan, Shelley is a Patient Relationship and Advocacy Manager for Sanofi Genzyme. She has the rare female form of severe hemophilia A.
The evening will feature a buffet dinner, a brief overview of the WHD theme, Reaching Out: The First Step to Care, and followed by an update on Sanofi Genzyme’s Humanitarian Aid donation program. The heart of the presentation will be Project Gratitude – to encourage attendees to cultivate a habit of appreciation. Project Gratitude will include a Gratitude Tree activity, which engages attendees in a hands-on activity to build their own gratitude tree. Guests will be encouraged to think about what they are grateful for and gratitude trees will be available to take home as a reminder of the positives in their lives. In addition, the 21 Day Gratitude Challenge will be presented as a call to action to further encourage a habit of appreciation.
Did you know that this year marks the 29th World Hemophilia Day? This year, the WFH is focusing on reaching out and identifying new members of the bleeding disorders community. For many years, the WFH has supported outreach projects in different countries and conducted educational events for both lay persons and health care professionals in conjunction with our national member organizations (NMOs).
The WHD 2019 campaign will feature examples of WFH outreach initiatives such as organizing regional workshops, raising awareness of bleeding disorders through media coverage, training health professionals, and collecting data. It will combine these examples with submissions from our community about outreach efforts in their own regions and ideas about what would be helpful for future initiatives.
This landmark day also helps to illustrate the importance of the WFH Humanitarian Aid Program – an important endeavor for the WFH that provides a range of integrated care development training programs to ensure that the local infrastructure and medical expertise are available to optimize and appropriately use donated products.
Please register by Monday, April 15, 2019. If you have any questions, contact the HNC Office at firstname.lastname@example.org, or by phone at 800-990-5557 (toll free).
Finally, help us raise awareness the following day – April 17: World Hemophilia Day – by lighting it up red! The Wells Fargo Duke Energy Center in Charlotte will be lit red to commemorate the occasion. If you are in the Charlotte area, take pictures and share them on social media. You can tag @WFLightsCLT and @HemophiliaNC on Facebook, Instagram, and Twitter. Raise awareness in your local area and show us how you light it up red!
This event is being offered free to all HNC members and their immediate families. Priority will be given to HNC members who are not affiliated with a specialty pharmacy, home care, or pharmaceutical company that caters to the bleeding disorders community. If your group includes more than four persons, please contact the HNC office before registering.
optional: After the educational presentation is complete, attendees will have an opportunity to speak with Sanofi Genzyme representatives about products and services they offer to the community.
PLEASE NOTE: Information about this company's products and services is being provided as a public service only. As a non-profit advocate for the bleeding disorders community, Hemophilia of North Carolina does not endorse any treatment products, manufacturers, home care services, or individual medical providers.
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This page was last modified on Thursday, March 14th, 2019.