Event is over.
program presented by
World Hemophilia Day
Tuesday, April 17, 2018 – 6:00pm-9:00pm
Embassy Suites Uptown Charlotte
401 East Martin Luther King Jr. Boulevard
Charlotte, NC 28202
What are you doing for World Hemophilia Day? We hope you and your loved ones will come celebrate the special day with Hemophilia of North Carolina, members of Hemophilia of South Carolina, and Bioverativ. Help us raise awareness as we Light It Red in uptown Charlotte for this exciting and important once a year event.
Did you know that this year marks the 28th World Hemophilia Day? This is a date to raise awareness about bleeding disorders around the world. It is not known exactly how many people around the world have a bleeding disorder. However, it is estimated that 75% of those people do not have access to adequate treatment and care. This year, the World Federation of Hemophilia (WFH) is focusing its efforts on sharing knowledge. The bleeding disorders community is filled with first-hand knowledge, experience, and wisdom needed to increase awareness and improve access to care and treatment.
This evening will feature a buffet dinner, "Science Matters!" science activities, and a presentation given by Tanya Stephenson, Bioverativ CoRe Manager. Tanya's presentation will feature videos of scientists who will share their knowledge about their experience with developing bleeding disorders advancements. We hope this may inspire some of our younger community members in the audience who may be thinking of entering a science-related field in the future. Following the video presentation, there will be hands-on science activities for the entire family. Finally, to honor and show support of all people with bleeding disorders around the world, we will Light it Red and watch as the Duke Energy Center in Uptown Charlotte is lit red to commemorate World Hemophilia Day! The venue offers a nice view, so bring your camera.
Tanya is the Community Relations Manager (CoRe) for the Carolinas and Tennessee. She is the mother of two boys, Dylan and Alex. Dylan has severe hemophilia A. This influenced Tanya’s decision to dedicate her personal and professional life to serve the community. Tanya resides in Fort Mill, SC, and is available to serve the bleeding disorders community that she loves so dearly.
This event is being offered free to all HNC members. Because of space constraints, priority will be given to HNC members who are unaffiliated with home care, pharmaceutical, and other related industries. If your group includes more than four persons, please contact the HNC office before registering.
optional: After the educational presentation is complete, attendees will have an opportunity to speak with Bioverativ representatives about products and services they offer to the community.
PLEASE NOTE: Information about this company's products and services is being provided as a public service only. As a non-profit advocate for the bleeding disorders community, Hemophilia of North Carolina does not endorse any treatment products, manufacturers, home care services, or individual medical providers.
Questions? Contact the HNC office at email@example.com or by phone at 919-319-0014 or toll free at 800-990-5557.