Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
1-800-990-5557 (toll free)

Hotel registration deadline has passed.


The Hemophilia of North Carolina Annual Meeting will have child care for all ages (see below for details).

Saturday lunch and dinner, Sunday breakfast and lunch, refreshments, and child care will be available free of charge to the HNC membership through the support of generous grants and contributions from our community.

Traductores estaran disponible en la reunion para asistirle en Español.

Hemophilia of North Carolina gratefully acknowledges the pledge of support from the following companies and organizations for the 2020 HNC Annual Meeting:

Program Partners
Hemophilia Federation of America
National Hemophilia Foundation
Platinum Sponsors
Aptevo Therapeutics
Bayer
Drugco Health
Genentech
Novo Nordisk
Pfizer Hemophilia
Sanofi Genzyme
Takeda
Gold Sponsors
BioMarin
CSL Behring
CVS Specialty
Optum Infusion Pharmacy
Silver Sponsors
Accredo
Blue Sky Specialty Pharmacy
Diplomat Specialty
Infusion Group
Factor One Source
FAST Pharmacy
Grifols
HPC Specialty Pharmacy
Octapharma
Paragon Specialty Pharmacy
TwelveStone Health Partners

2020 HNC Annual Meeting

Advocacy: How It Can Help YOU

Saturday, March 7, 2020 – Sunday, March 8, 2020

Hilton Raleigh North Hills
3415 Wake Forest Road
Raleigh, North Carolina 27609

This event is over.

Informacion en español


Go to: First Time Attendees  *  Program Overview   *   Child Care & Youth Programs  *  Afterwards  *  Hotel Information

The Hemophilia of North Carolina (HNC) Annual Meeting is the state's largest gathering for the bleeding disorders community and a terrific educational opportunity. Now a two-day event, we look forward to making this 47th annual conference even bigger with your help and support! As always, this is a great chance for you to network with fellow members and to hear from the experts on topics relevant to you.

At the end of the second day, we'll have raffles and door prizes! You must be present to win.

ADVOCACY: How It Can Help YOU

We are all advocates! According to dictionary.com the definition of advocacy is the act of pleading for, supporting, or recommending. You will often hear HNC talk about advocacy, but what does it mean for you? Learn more about how advocacy can help you, and best practices to help you advocate.

As always, you will have the chance to meet and connect with other families and individuals who share the same challenges.

We look forward to seeing you as we learn how Advocacy Can Help You!.

 

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* First-time Attendees

Once again, we’ll have a special session in the morning for anyone who has never been to one of HNC’s Annual Meetings. Whether you’re new to the community or have just never experienced our Annual Meeting, we encourage you to join us from 10:30am-11:00am for the “First-time Attendee” session.

If you are a first-time attendee, please indicate this on your registration application form. HNC will contact you about gas cards to help with your travel costs (these will be handed out at the end of the day on Sunday).

We’ll have a lot of great information that will help to make your first HNC Annual Meeting more meaningful!

 

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Program Overview

(Speakers and topics subject to change.)

  • Saturday Highlights
    • Orientation for First-time Attendees (10:30am)
    • Keynote Session: Nathan Wilkes, Hemophilia Federation of America
    • Meeting of the Membership (3:30pm)
      • Annual and Financial Reports
      • Election of Members of the Board of Directors
  • Sunday Highlights
    • Sessions begin at 9:00am
    • Current & Future Treatments for All Bleeding Disorders – Alice Ma, MD (1:30pm)
  • Breakout Sessions Across Both Days (schedule TBA)
    • Unión Latina – Latin Union, en español
    • Transitioning from Pediatric to Adult Care
    • Alternative and Contemporary Therapies
    • Rare Bleeding Disorders
    • HOPEfor parents of children with bleeding disorders
    • SOARfor women and girls with bleeding disorders
    • Blood Brotherhoodfor adult men with bleeding disorders
    • Spouses/Partners, Caregivers, and Loved Ones

 

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* Child Care and Youth Programs *

We will have child care for all ages.

Child care for infants and toddlers age 3 and under will be provided by Peak City Sitters.

Children 4-8 & 9-12: Children will participate in a variety of activities throughout the weekend, including education about living with a bleeding disorder, making "Blood Sundaes", crafts and games, and other fun activities. The children will be either separated by age group or all together depending on the specific activities.

* Teen Program (Ages 13-17) *

Teens will be participating in programs meant just for them, including a teen panel with others who have been there before them, a field trip to Frankie's Fun Park, general sessions about topics important for teens today, and time to just "hang out". Additionally, teens may bring a friend. Details on programs and activities TBA.


All children and teen activities are optional, so please let us know if you do not plan to take advantage of these wonderful activities.

 

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* Saturday Night (optional activity) *

Do you have any special talents? Are you a singer? Are you a master of illusions? Do you dance? Join us for Raleigh's Got Talent on Saturday evening after dinner, and let's see how talented the HNC community is!

* Sunday Afterwards *

Door Prizes and Raffle Drawings (you must be present to win)

 

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* Hotel Information *

One hotel room will be provided at no cost to HNC members who are attending both days of the Annual Meeting. Saturday lunch and dinner, Sunday breakfast and lunch, refreshments, and child care will be available free of charge to the HNC membership through the support of generous grants and contributions from our community.

A block of rooms is available for HNC members who are paying for their own accommodations. You may make a reservation at the group rate of $129/night on the hotel’s online registration website. Use the discount code HNC when registering online.

A separate discounted room reservation link for sponsors and healthcare providers will be available soon.

You may also call the hotel at 919-872-2323 and mention Hemophilia of North Carolina Annual Meeting.

You must make your reservation by Friday, February 14th, 2020 to guarantee this rate.

Sponsorship opportunities are available. Please contact HNC at 800-990-5557 or by email at events@hemophilia-nc.org for more information.


HNC Hemophilia of North Carolina 260 Town Hall Dr., Suite A, Morrisville, NC 27560 — 1-800-990-5557 (toll free) Hemophilia of North Carolina is a 501(c)(3) non-profit organization.
All donations are tax-deductible.
 Indicates a link to an external site (outside of HNC)
https://hemophilia-nc.org/AnnualMeetings/HNC-2020/index.php
 This page was last modified on Tuesday, February 25th, 2020.