Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
1-800-990-5557 (toll free)
HNC Annual Meeting

* Registration is Required.


Hotel registration deadline has passed.


The Hemophilia of North Carolina Annual Meeting will have child care for all ages (see below for details).

Breakfast, lunch, refreshments, and child care will be available free of charge to the HNC membership through the support of generous grants and contributions from our community.

Traductores estaran disponible en la reunion para asistirle en Español.

Hemophilia of North Carolina gratefully acknowledges the pledge of support from the following companies and organizations for the 2019 HNC Annual Meeting:

Program Partners
Hemophilia Federation of America
National Hemophilia Foundation
Platinum Sponsors
CSL Behring
Genentech
Novo Nordisk
Pfizer Hemophilia
Shire
Gold Sponsors
Bayer
Drugco Health
Silver Sponsors
Accredo
Bioverativ
CVS Specialty
Diplomat Specialty
Infusion Group
The Ethical Factor
Factor One Source
FAST Pharmacy
HPC Specialty Pharmacy
InfuCare Rx
Kedrion BioPharma
Matrix Health Group
Octapharma
Realo Specialty Care Pharmacy
Spark Therapeutics
uniQure

2019 HNC Annual Meeting

Moving the Community Forward

Saturday, March 2, 2019 – 9:00am-5:30pm

Sheraton Charlotte Airport Hotel
3315 Scott Futrell Drive
Charlotte, NC 28208

Registration deadline is Monday, February 18, 2019.

Informacion en español


Go to: First Time Attendees  *  Program Overview   *   Child Care & Youth Programs  *  Afterwards  *  Hotel Information

The Hemophilia of North Carolina (HNC) Annual Meeting is the state's largest gathering for the bleeding disorders community and a terrific educational opportunity. We look forward to making this 46th full-day event even bigger with your help and support! As always, this is a great chance for you to network with fellow members and to hear from the experts on topics relevant to you.

At the end of the day, we'll have raffles and door prizes – lots of them! You must be present to win.

A Look into the Future

New treatments and therapies are just around the corner! This year’s HNC Annual Meeting is where you can hear about what’s coming in the pipeline. It’s also a time to remember the events that got us here and the heroes that led the way. Learn how HNC continues to serve people across state affected by bleeding disorders through its many programs and services. As always, you’ll have a chance to meet and connect with other families and individuals who share the same challenges. We look forward to seeing you on March 2 as we Move the Community Forward.

Keynote Session: In the Pipeline

Steven Pipe, MD, Pediatric Medical Director, Hemophilia and Coagulation Disorders Program, Director, Special Coagulation Laboratory, University of Michigan.


Bad Blood: A Cautionary Tale – a screening of a documentary film by Marilyn Ness and Sheila Curran Bernard.


Your Impact on the Bleeding Disorders Community

 

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* First-time Attendees

Once again, we’ll have a special session in the morning for anyone who has never been to one of HNC’s Annual Meetings. Whether you’re new to the community or have just never experienced our Annual Meeting, we encourage you to join us from 8:30am-9:00am for the “First-time Attendee” session. You can grab your breakfast from the buffet and enjoy it with fellow first-timers.

If you are a first-time attendee, please indicate this on your registration application form. HNC will contact you about a hotel room for Friday night and about gas cards to help with your travel costs (these will be handed out at the end of the day).

We’ll have a lot of great information that will help to make your first HNC Annual Meeting more meaningful!

You must register on or before Friday, February 1st, 2019 in order to secure a hotel room.

 

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Program Overview

(Speakers and topics subject to change.)

  • General Sessions
    • Keynote Session: In the Pipeline – Steven Pipe, MD, Pediatric Medical Director, Hemophilia and Coagulation Disorders Program, Director, Special Coagulation Laboratory, University of Michigan.
    • Bad Blood: A Cautionary Tale – a screening of a documentary film by Marilyn Ness and Sheila Curran Bernard.

      Bad Blood chronicles how a "miracle" treatment for hemophilia became an agent of death for 10,000 Americans. Faced with evidence that pharmaceutical companies and government regulators knew the product was contaminated with deadly viruses, the hemophilia community launched a powerful and inspiring fight to right the system that failed them and to make it safer for all.

    • Your Impact in the Bleeding Disorders Community – how you can have a positive impact on your own life and the lives around you through HNC.
  • Meeting of the Membership
    • Annual and Financial Reports
    • Election of Members of the Board of Directors
  • Breakout Sessions
    • Morning
      • Unión Latina – Latin Union, en español
      • Von Willebrand Disease
      • Factor Function: How Half-life Affects You
      • Rare Bleeding Disorders Round-table
    • Afternoon
      • HOPEfor parents of children with bleeding disorders
      • SOARfor women and girls with bleeding disorders
      • Blood Brotherhoodfor adult men with bleeding disorders
      • Spouses, Caregivers, and Loved Ones

 

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* Child Care and Youth Programs *

We will have child care for all ages. Daycare and babysitting will be provided by Nannys Plus Mobile Childcare Service.

Child care for infants and toddlers age 3 and under will be available in breakout rooms near the main session hall.

Children 4-8 & 9-12: Children will participate in a variety of activities throughout the day, including "My Amazing Blood" (ages 4-8) and "Junior Scientist" (ages 9-12) where they will learn more about their bleeding disorder, plus a magic show, crafts, games, and more. The children will be either separated by age group or all together depending on the specific activities.

* Teen Program (Ages 13-17) *

Morning programs will include sessions on how to be an advocate, and using ultrasound in the care of bleeding disorders. After lunch the teens will depart for the Inner Peaks Climbing Center, a 13,000 square foot indoor rock climbing facility.

Please indicate in the registration form comments if your teen will NOT be participating in the teen programming. Parents of all rock climbing participants must complete an Inner Peaks E-WAIVER.

Participants should bring or wear comfortable clothes suitable for rock climbing. Athletic shorts and a T-shirt are recommended, along with closed-toe athletic shoes. All instruction will be provided by certified instructors.


All children and teen activities are optional, so please let us know if you do not plan to take advantage of these wonderful activities.

 

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* Afterwards *

Door Prizes and Raffle Drawings (you must be present to win)

 

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* Hotel Information *

The Sheraton Charlotte Airport Hotel is offering a special room rate of $129/night. You can make a reservation online, or call the hotel at 800-325-3535 and mention Hemophilia of North Carolina Annual Meeting. You must make your reservation by Friday, February 1st, 2019 to guarantee this rate.

Sponsorship opportunities are available. Please contact HNC at (800)990-5557 or by email at events@hemophilia-nc.org for more information.


HNC Hemophilia of North Carolina 260 Town Hall Dr., Suite A, Morrisville, NC 27560 — 1-800-990-5557 (toll free) Hemophilia of North Carolina is a 501(c)(3) non-profit organization.
All donations are tax-deductible.
 Indicates a link to an external site (outside of HNC)
https://hemophilia-nc.org/AnnualMeetings/HNC-2019/index.php
 This page was last modified on Friday, February 15th, 2019.