Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
1-800-990-5557 (toll free)
HNC Legislative Building

* Registration is Required.

For members traveling more than 30 miles from the Raleigh area, a limited number of hotel rooms will be available by request at the Hampton Inn & Suites Raleigh Downtown.

You may make your own reservation at the group rate on the hotel’s online registration website.

* The deadline for reserving a hotel room is Friday, January 25th, 2019.

HNC Legislative Day and NC Rare Disease Day

Make Your Voice Heard!

Tuesday, February 12, 2019 – 8:45am-3:00pm

NC Legislature Building
16 West Jones Street
Raleigh, NC 27601

Registration deadline is Tuesday, February 5, 2019.


An important new year is upon us as Hemophilia of North Carolina (HNC) begins a partnership with the National Organization for Rare Disorders (NORD) to host the NC Rare Disease Day at the Legislature. For years this has been HNC’s Legislative Day for the bleeding disorders community. But now it's even bigger as we invite other nonprofits to join. HNC looks forward to working with NORD and rare disorder organizations from across the state to have a collective voice about issues that affect a much larger common community. Details are still being finalized, but it’s sure to be an HNC event you won’t want to miss!

The focus of this event continues to be toward building awareness and relationships among our state's bleeding disorders community and our elected state representatives. There are many changes looming in 2019 with respect to healthcare and NC Medicaid. As this event aproches, the HNC Advocacy Committee will work with fellow nonprofits to determine the specific issues with the greatest impact on people affected by rare disorders. You can do your part to aid this effort: join HNC and tell your story to members of the North Carolina Legislature!

HNC is an organization that serves all of North Carolina. We need members from all corners of the state join us in Raleigh and represent the bleeding disorders community to their district representatives.

Legislative Day Schedule

Monday, February 11th (Optional)
Hampton Inn & Suites Raleigh Downtown
600 Glenwood Ave.
Raleigh, NC 27603

6:30pm–7:15pm: Dinner

7:15pm–8:15pm: Training Session
(topic TBD)

8:15pm–8:30pm: Q & A

Tuesday, February 12th

8:45am–9:00am: Briefing at HNC booth
Halifax Mall
300 N Salisbury Street
Raleigh

9:00am–3:00pm: Meet with legislators and staff
NC State Legislative Building
16 West Jones Street
Raleigh, NC

There will be an optional dinner and training session on Monday, February 11th to help prepare you to speak with your representatives.

On Tuesday, February 12th, HNC members will have the opportunity to meet in groups with their legislators and staff.

There are some changes this year from prior years: HNC and other rare disorder organizations will have a booth at the Halifax Mall to help raise awareness among legislative staff and the general public. The Halifax Mall is located between the two legislature buildings. There is a lot of foot traffic which will provide an excellent opportunity to raise awareness. The morning will begin with a briefing at 8:45am at the HNC Booth at the Halifax Mall. After receiving your schedule and appointments for the day, participatints will walk over to the Legislature Buildings to meet with their legislators and staff.

Parking at the Hotel

Parking at the hotel is $6*. The hotel is within .7 miles (a 15-minute walk) of the Legislative Building. You can choose to walk or find parking closer (see below).

Walking Directions from Hotel to the HNC booth at the Halifax Mall

Out of the hotel, turn left on W Johnson Street, then turn right on N West Street. Walk 2 blocks (0.2 miles) and turn left on W North Street. Turn right onto N Harringston Street (less than .1 miles) and then make the first left onto W Lane Street. Stay on W Lane Street for .3 miles then turn left onto N Salisbury Street. The Legislative Office Building will be on your right as you walk down Salisbury Street. Go around the Legislative Office Building and the HNC booth will be behind the building in the Halifax Mall area.

Parking for the Legislative Building

Parking is available weekdays in several public pay parking decks* within walking distance. The Green Square parking deck is at the corner of Edenton and McDowell Streets, behind the Nature Research Center (NRC). The entrance to the deck is on Edenton between Salisbury and McDowell Streets. Exit the deck on the north side and you will be at the back entrance to the NRC.

*Please see Charlene for parking reimbursement.



HNC Hemophilia of North Carolina 260 Town Hall Dr., Suite A, Morrisville, NC 27560 — 1-800-990-5557 (toll free) Hemophilia of North Carolina is a 501(c)(3) non-profit organization.
All donations are tax-deductible.
 Indicates a link to an external site (outside of HNC)
https://hemophilia-nc.org/Advocacy/LegislativeDay-2019/index.php
 This page was last modified on Monday, January 7th, 2019.