Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
1-800-990-5557 (toll free)

Bylaws of HNC

Board Member Nomination Policy

Board of Directors, 2018-19

Meet the previous (2017-2018) Board, who took office on July 1, 2017

Amy Shair Miller, President
    Durham, NC
Term: July 1, 2017 - June 30, 2019
<amy.shair@hemophilia-nc.org>

Amy moved to North Carolina in 1987 after living in Texas and Massachusetts. Amy graduated from NC State University with a degree in business management. Amy is a residential real estate broker with RE/MAX United. She has earned several national designations and won numerous company awards. Amy lives in Durham with her husband and two children. Amy has been on the HNC board since 2010, and has served on the scholarship committee, marketing committee and governance committee. She has no relationship with hemophilia or other bleeding disorder.

Matthew Igelman, Secretary; Advocacy Chair
    Wake Forest, NC
Term: July 1, 2017 - June 30, 2019
<matt.igelman@hemophilia-nc.org>

Living with severe hemophilia A, Matt is very dedicated to the bleeding disorders community. As an active part of the community over the last decade Matt has advocated on both a local and national level. He has served on the Hemophilia Federation of America’s board of directors and has been Site Coordinator to HNC’s Blood Brotherhood program since its inception. Connecting people in our community and facing our challenges together with shared experience is a pillar in overcoming his hemophilia.

Kathy Register, Treasurer
    Durham, NC
Term: July 1, 2018 - June 30, 2020
<kathy.register@hemophilia-nc.org>

Kathy is returning to the HNC board after a six-year hiatus. She has been an officer or board member (most recently treasurer) on and off since the mid 1970s. She and husband Charles (severe factor VIII deficient) have stayed involved – Charles as HNC’s volunteer webmaster – and both of them (at different times) as volunteer Interim Executive Director, and as captains of the Family Festival Clot Hoppers Team. They both currently serve on the NC Advisory Board for Bleeding Disorders. Kathy and Charles have two grown sons and two adorable granddaughters, ages 8 and 11.

Reid Coleman
    Winston-Salem, NC
Term: July 1, 2017 - June 30, 2019
<reid.coleman@hemophilia-nc.org>

Reid is a social media and community advocate for people living with hemophilia, HIV, and/or hepatitis C (HCV). He actively lobbies on the state and federal level for legislation associated with health care and hemophilia. With a vast knowledge in social services, community services and developmental disability, Reid aims to make an impact. In his spare time, he shares information about issues facing the community and actively participates in the Blood Brotherhood program. He also encourages the community to get active in causes that affect Hemophilia, HIV, and HCV. Reid helps connect people with services on a local, state, federal level that may be of benefit to them. He delivers speeches on state levels to groups on the use of Vocational Rehabilitation to provide education or support services for people with bleeding disorders. Reid has been serving on the HNC Board of Directors since 2013 and is also a member of the Committee of Ten Thousand (COTT).

Kelly Cribbs
    Wake Forest, NC
Term: July 1, 2018 - June 30, 2020
<kelly.cribbs@hemophilia-nc.org>

A native of Gastonia, North Carolina, Kelly currently resides in Wake Forest, calling the Triangle region home. She and her husband, Malcolm, have been married for 12 years and are the proud parents of three boys; Brandon 10, Braylon 7, and Bryson 5. Both Brandon and Braylon have severe hemophilia (Factor IX) and have battled inhibitors; however, with a strong family support system and a wonderful team at the UNC Hemophilia Treatment Center, Kelly has been able to navigate the exciting and challenging world of bleeding disorders. Kelly has been a member of Hemophilia of North Carolina since 2008, serving on the NC Advisory Board for Bleeding Disorders, HOPE committee, Scholarship and Advocacy committees, and as an advocate during NC Legislative Day and Washington Days on Capitol Hill. Kelly is also a member of The Autism Society of North Carolina, which advocates for those in the autism/special needs community. Kelly currently works within the clinical research industry as a pharmacovigilance specialist where she is a project lead on various NIH sponsored clinical trials. She is also finishing her graduate degree in pharmaceutical science at North Carolina Central University where she is a member of the International Society of Pharmaceutical Engineers. Kelly holds a Bachelors of Science in biology with a minor in psychology from Hampton University in Virginia. In her spare time, Kelly and her husband are culinary explorers with a passion for traveling. She also enjoys spending time on her most recent interest, gardening.

Tiffany Hargett
    Colfax, NC
Term: July 1, 2018 - June 30, 2020
<tiffany.hargett@hemophilia-nc.org>

Tiffany was born and raised in Guilford County, NC. She attended the University of North Carolina at Greensboro where she received a Bachellor of Science in sociology with a concentration in criminology. Tiffany is married to Brandon, and together have three sons, Nick, Zack, and Kam, along with two furbabies, Jackson and Bay. After graduating from UNCG, Tiffany moved to Clemson, SC, to be with Brandon while he finished college and worked in mental health as a counselor at a group home. Once Brandon graduated, they moved back to North Carolina and got married. Shortly after marriage Nick was born. Then, Zack was born in September of 2008 and at 5½ months old was diagnosed with hemophilia A (severe). At nine months he was diagnosed with an inhibitor, and shortly after that Tiffany found out that she is a carrier. The Hargetts have been involved with HNC for nine years, attending Washington Days for seven years, and it’s one of their favorite things to do. They try to make it to Legislative Days and other HNC events as much as possible, whenever they don’t have sports. All three of the Hargett boys truly believe they are family with everyone in this tight-knit community. Tiffany now resides in Colfax, NC with her family, and is very excited to be on the board, looking forward to what the future of HNC has in store.

Tyronna Hooker, MEd
    Graham, NC
Term: July 1, 2018 - June 30, 2020
<tyronna.hooker@hemophilia-nc.org>

Tyronna is a former North Carolina Teacher of the Year and the current executive director for Alamance Achieves. Upon completing high school in Elizabethtown, NC she went on to earn a Bachelor of Science degree in criminal justice from North Carolina Central University. After earning her teacher certification, she earned a Master of Education from Elon University with a specialization in special education.

Tyronna is an associate pastor at Parrish Chapel UCC and is an active member of the choir and the youth department director. She is dedicated to helping, healing and revealing the purpose God has for the youth and families. She believes that every child has the right to learn to read or someone will read them their rights. She is an innovator with bold ideas, high energy and a heart for helping children achieve their purpose. She has experienced the challenges of chronic illness firsthand because both of her sons, Myles and Kendall, have severe hemophilia.

Steven Humes, MM, MPH
    Hemophilia Treatment Center
    University of North Carolina at Chapel Hill
Term: July 1, 2018 - June 30, 2020
<steven.humes@hemophilia-nc.org>

Steven is the Regional Coordinator for the Region IV-North Hemophilia Treatment Center Network composed of ten hemophilia centers in Kentucky, North Carolina, South Carolina, and Tennessee. He is based at the University of North Carolina at Chapel Hill, which holds subcontracts from Hemophilia of Georgia/the Maternal and Child Health Bureau and the American Thrombosis and Hemostasis Network/Centers for Disease Control and Prevention supporting the network. He has worked in public health for over twenty-five years and holds a master’s degree in public health from Hunter College (New York, NY) with a concentration in community health education. Prior to assuming his current position in 2005, he was the Director of Research at the National Hemophilia Foundation and the Director of HIV Prevention at Gay Men’s Health Crisis, both in New York City.

Steven Peretti, PhD
    Durham, NC
Term: July 1, 2017 - June 30, 2019
<steve.peretti@hemophilia-nc.org>

Steve happily juggles the demands of a research and teaching career, five children, six grandchildren, and a medieval Latin scholar wife. He is an associate professor of chemical engineering at NC State University, and has a special interest in biofuels and sustainability. He has no relationship with hemophilia or other bleeding disorder.

Miriam "Michelle" Vanhook
    Durham, NC
Term: July 1, 2018 - June 30, 2020
<michelle.vanhook@hemophilia-nc.org>

A North Carolina native, born and raised in Scotland County, Michelle received a BS in Biology, with concentration in Molecular Biology from Winston-Salem State University and a MS in Biology from North Carolina Central University. She currently works as a Project Manager in Regional Research Clinical Trials at LabCorp where one of her projects involves FVIII and FIX testing in support of a post-market hemophilia program. Michelle became involved with Hemophilia of North Carolina as a walk volunteer through her good friend Tyronna Hooker and her sons, both living with the disorder. She has a creative, energetic spirit and warm personality with a genuine desire to help others. When free time allows, Michelle enjoys baking and entertaining. Most of her non-working hours are spent doing extracurricular activities with her husband of 17 years, their 12 year-old son Jared, 3 year-old fur baby Roxi, and their newest addition, 8 year-old horse Carter.

Bryant Windham
    Raleigh, NC
Term: July 1, 2018 - June 30, 2020
<bryant.windham@hemophilia-nc.org>

Bryant is a native of Detroit, Michigan, and relocated to North Carolina in 2010. Bryant has a degree in business and marketing from Northwood University and a MBA from Keller Graduate School of Management. He currently works as a project coordinator for Syneos Health. He will look to leverage his years of marketing, project management and leadership experience to benefit HNC. Bryant has a true desire to serve his community and help shape the minds of our youth. He has worked with the Kappa Foundation of Cary through heading up their youth leadership program and volunteered with the Food Bank of NC through the White Oak Foundation. Bryant lives in Raleigh with his wonderful wife, daughter and son. He enjoys college football, spending time with family and mentoring. Bryant looks to bring his passion of service to HNC and believes that promoting awareness of bleeding disorders in our communities aids in the quality of life for persons affected and their families. He has no relationship with hemophilia or other bleeding disorders.


Professional Staff

Charlene Cowell, Executive Director
    Apex, NC
<charlene.cowell@hemophilia-nc.org>

Charlene began her career with HNC as a volunteer in 2007 and during that time graduated from the University of North Carolina at Charlotte with a BA in Psychology. As a volunteer and staff member for HNC, Charlene has assisted in the development of all HNC programs, retreats and fundraisers. She has continued to find her motivation and inspiration from community members. Charlene is currently pursuing a Master of Public Administration degree at UNC Chapel Hill. She is the daughter of Sue Cowell, former HNC Executive Director, now with Bioverativ.

Karyn Davis, Manager of Operations
    Cary, NC
<karyn.davis@hemophilia-nc.org>

Originally from New Jersey, Karyn relocated to North Carolina in 2011 after residing in Georgia for sixteen years. Following an early career in client services, Karyn spent several years as a stay-at-home parent before returning to school and earning a degree in Human Services, Non-profit Administration, from Kennesaw State University in Kennesaw, Georgia. In addition to her work experience, Karyn has held several volunteer positions in variety of non-profit organizations throughout her career. She currently lives in Cary, NC, with her husband and two sons and is grateful to be working for an organization that provides meaningful support to the members of the bleeding disorders community. She has no relationship with hemophilia or other bleeding disorder.

Gillian Schultz, Program Manager
    Matthews, NC
<gillian.schultz@hemophilia-nc.org>

Gillian first became involved with HNC in 2010 after her newborn son Noah was diagnosed with hemophilia. She began volunteering her time with the HOPE Program for families and became the volunteer coordinator in 2013. She was the 2014 Hemophilia Walk Chair and the Walk Manager for the 2015 Charlotte Hemophilia Walk. In addition to her job with HNC, Gillian sits on the Hemophilia Federation of America Board as the representative from North Carolina. Gillian has also worked as a public school orchestra teacher and violin instructor. She has her bachelor's degree and master's degree in music education. Gillian enjoys developing programs and events so that everyone in the community feels supported and has the education they need so that they do not feel limited by their bleeding disorder. Gillian lives in Matthews, NC with her husband Karl and two sons; Riley, who does not have hemophilia, and Noah who has moderate Hemophilia A.

Jamie Strom, Administrative Assistant
    Raleigh, NC
<finance@hemophilia-nc.org>

In addition to her part-time duties at HNC, Jamie is the Operations Manager at the Morrisville Chamber of Commerce. She also does bookkeeping for a few small businesses in her spare time. She has a passion for watching small companies grow and being a part of their successes. Jamie is a rare native of Raleigh, NC, and graduated from Wake Technical Community College in 2011 with an AAS in Accounting. She started with HNC as a volunteer in November 2012. She has also done volunteer service with Meals on Wheels, Triangle Family Services, and other organizations in the Triangle area. Jamie has an nine-year-old son who drives her to be successful and show him that anything is possible. In her spare time she enjoys being involved in extracurricular activities with her son, cross-stitching, reading, and socializing with amazing friends and family.



Main Office
260 Town Hall Dr., Suite A
Morrisville, NC 27560
<info@hemophilia-nc.org>
(800) 990-5557 (toll free)
(919) 319-0014 (direct)
(919) 319-0016 (fax)
Find us on Google Maps.

Unless mentioned otherwise above, no members of the HNC Board of Directors, staff, or their immediate families have any affiliation with industry related to the care and treatment of persons with bleeding disorders; nor are they a member of, or serving on the board of, any other organization within the bleeding disorders community; nor are other family members presently serving on the HNC Board of Directors.



HNC Hemophilia of North Carolina 260 Town Hall Dr., Suite A, Morrisville, NC 27560 — 1-800-990-5557 (toll free) Hemophilia of North Carolina is a 501(c)(3) non-profit organization.
All donations are tax-deductible.
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http://hemophilia-nc.org/board.php
 This page was last modified on Tuesday, October 16th, 2018.