Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
1-800-990-5557 (toll free)

Bylaws of HNC

Board of Directors, 2017-18

Meet the previous (2016-2017) Board, who took office on July 1, 2016

Amy Shair Miller, President
    Durham, NC
Term: July 1, 2017 - June 30, 2019
<amy.shair@hemophilia-nc.org>

Amy moved to North Carolina in 1987 after living in Texas and Massachusetts. Amy graduated from NC State University with a degree in business management. Amy is a residential real estate broker with RE/MAX United. She has earned several national designations and won numerous company awards. Amy lives in Durham with her husband and two children. Amy has served on the scholarship committee, marketing committee and governance committee and is currently in her sixth year on the HNC board. She has no relationship with hemophilia or other bleeding disorder.

Luke T. Waller, MBA-HCM, Vice President
    Greenville, NC
Term: July 1, 2016 - June 30, 2018
<luke.waller@hemophilia-nc.org>

A native of eastern North Carolina, Luke graduated from East Carolina University with an MBA in Health Care Management. He works as a Project Coordinator with the Systems and Procedures division, an internal business consulting resource, at Vidant Health. Luke was diagnosed with severe hemophilia A as an infant. In his past he has volunteered with the American Red Cross at blood donation drives and community events as a way to give back to his local community much in the way he was helped during childhood and adolescence. He joined the National Hemophilia Foundation and Hemophilia of North Carolina with the hope of contributing his experience and expertise, both now and into the future. Since Luke’s election to the Board of Directors, he has served on the scholarship, advocacy, and governance committees and has also been a participating member at several Legislative Days events. He wants to increase access to treatment and the quality of services for individuals with bleeding disorders so that they can prosper and reach their full potential in life. In his spare time, while not volunteering and spending time with friends and family, Luke enjoys fishing, exercising, and the wonderful North Carolina environment.

Matthew Igelman, Secretary; Advocacy Chair
    Wake Forest, NC
Term: July 1, 2017 - June 30, 2019
<matt.igelman@hemophilia-nc.org>

Living with severe hemophilia A, Matt is very dedicated to the bleeding disorders community. As an active part of the community over the last decade Matt has advocated on both a local and national level. He has served on the Hemophilia Federation of America’s board of directors and has been Site Coordinator to HNC’s Blood Brotherhood program since its inception. Connecting people in our community and facing our challenges together with shared experience is a pillar in overcoming his hemophilia. Matt is an independent contractor for Diplomat Specialty Infusion Group.

Michael Hoernlein, Treasurer
    Charlotte, NC
Term: July 1, 2016 - June 30, 2018
<michael.hoernlein@hemophilia-nc.org>

Mike is a litigation attorney and Certified Fraud Examiner in Charlotte. As a partner at the law firm of Alston & Bird LLP, Mike represents individual and corporate clients in complex criminal and civil matters and conducts internal corporate investigations. His wife and son have von Willebrand disease, and the entire family has been active in HNC for several years. Mike is very happy to be able to contribute to HNC’s mission as a member of the Board.

Reid Coleman
    Winston-Salem, NC
Term: July 1, 2017 - June 30, 2019
<reid.coleman@hemophilia-nc.org>

Reid is a social media and community advocate for people living with hemophilia, HIV, and/or hepatitis C (HCV). He actively lobbies on the state and federal level for legislation associated with health care and hemophilia. With a vast knowledge in social services, community services and developmental disability, Reid aims to make an impact. In his spare time, he shares information about issues facing the community and actively participates in the Blood Brotherhood program. He also encourages the community to get active in causes that affect Hemophilia, HIV, and HCV. Reid helps connect people with services on a local, state, federal level that may be of benefit to them. He delivers speeches on state levels to groups on the use of Vocational Rehabilitation to provide education or support services for people with bleeding disorders. Reid has been serving on the HNC Board of Directors since 2013 and is also a member of the Committee of Ten Thousand (COTT).

Tyronna Hooker, MEd
    Graham, NC
Term: July 1, 2016 - June 30, 2018
<tyronna.hooker@hemophilia-nc.org>

Tyronna is a former North Carolina Teacher of the Year and the current Director, District and School Partnerships for Teach For America, Eastern North Carolina. Upon completing high school in Elizabethtown, NC she went on to earn a Bachelor of Science degree in criminal justice from North Carolina Central University. After earning her teacher certification, she earned a Master of Education from Elon University with a specialization in special education.

Tyronna is an associate pastor at Parrish Chapel UCC and is an active member of the choir and the youth department director. She is dedicated to helping, healing and revealing the purpose God has for the youth and families. She believes that every child has the right to learn to read or someone will read them their rights. She is an innovator with bold ideas, high energy and a heart for helping children achieve their purpose. She has experienced the challenges of chronic illness firsthand because both of her sons, Myles and Kendall, have severe hemophilia.

Steven Humes, MM, MPH
    Hemophilia Treatment Center
    University of North Carolina at Chapel Hill
Term: July 1, 2016 - June 30, 2018
<steven.humes@hemophilia-nc.org>

Steven is the Regional Coordinator for the Region IV-North Hemophilia Treatment Center Network composed of ten hemophilia centers in Kentucky, North Carolina, South Carolina, and Tennessee. He is based at the University of North Carolina at Chapel Hill, which holds subcontracts from Hemophilia of Georgia/the Maternal and Child Health Bureau and the American Thrombosis and Hemostasis Network/Centers for Disease Control and Prevention supporting the network. He has worked in public health for over twenty-five years and holds a master’s degree in public health from Hunter College (New York, NY) with a concentration in community health education. Prior to assuming his current position in 2005, he was the Director of Research at the National Hemophilia Foundation and the Director of HIV Prevention at Gay Men’s Health Crisis, both in New York City.

Steven Peretti, PhD
    Durham, NC
Term: July 1, 2017 - June 30, 2019
<steve.peretti@hemophilia-nc.org>

Steve happily juggles the demands of a research and teaching career, five children, six grandchildren, and a medieval Latin scholar wife. He is an associate professor of chemical engineering at NC State University, and has a special interest in biofuels and sustainability. He has no relationship with hemophilia or other bleeding disorder.

Leroy Taylor
    Durham, NC
Term: May, 2017 - June 30, 2019
<leroy.taylor@hemophilia-nc.org>

Leroy is a disabled veteran, married with two children -- a son in college, and a daughter in high school -- both affected by bleeding disorders. He was first introduced to the hemophilia community in 1998 with his son's diagnosis with severe hemophilia A. His relationship grew stronger in 2008 with the diagnosis of his daughter's von Willebrand disease. He is a dedicated father, who by serving on the board hopes to advocate for the future of children with bleeding disorders. He would like to help others in the community as those that have and continue to help him.

Arlette Whitaker, RN
    Greenville, NC
Term: July 1, 2016 - June 30, 2018
<arlette.whitaker@hemophilia-nc.org>

Arlette is a pediatric and adult hemophilia nurse at the East Carolina University Hemophilia Treatment Center. She has served as a clinical nurse specialist for almost four years in hemophilia and bleeding disorders. She also has been actively involved in hemophilia education and volunteer opportunities. She has a desire to promote hemophilia awareness and education to patients, families and the community.


Professional Staff

Charlene Cowell, Executive Director
    Apex, NC
<charlene.cowell@hemophilia-nc.org>

Charlene began her career with HNC as a volunteer in 2007 and during that time graduated from the University of North Carolina at Charlotte with a BA in Psychology. As a volunteer and staff member for HNC, Charlene has assisted in the development of all HNC programs, retreats and fundraisers. She has continued to find her motivation and inspiration from community members. Charlene is currently pursuing a Master of Public Administration degree at UNC Chapel Hill. She is the daughter of Sue Cowell, former HNC Executive Director, now with Bioverativ.

Karyn Davis, Manager of Operations
    Cary, NC
<karyn.davis@hemophilia-nc.org>

Originally from New Jersey, Karyn relocated to North Carolina in 2011 after residing in Georgia for sixteen years. Following an early career in client services, Karyn spent several years as a stay-at-home parent before returning to school and earning a degree in Human Services, Non-profit Administration, from Kennesaw State University in Kennesaw, Georgia. In addition to her work experience, Karyn has held several volunteer positions in variety of non-profit organizations throughout her career. She currently lives in Cary, NC, with her husband and two sons and is grateful to be working for an organization that provides meaningful support to the members of the bleeding disorders community. She has no relationship with hemophilia or other bleeding disorder.

Gillian Schultz, Program Manager
    Matthews, NC
<gillian.schultz@hemophilia-nc.org>

Gillian first became involved with HNC in 2010 after her newborn son Noah was diagnosed with hemophilia. She began volunteering her time with the HOPE Program for families and became the volunteer coordinator in 2013. She was the 2014 Hemophilia Walk Chair and the Walk Manager for the 2015 Charlotte Hemophilia Walk. In addition to her job with HNC, Gillian sits on the Hemophilia Federation of America Board as the representative from North Carolina. Gillian has also worked as a public school orchestra teacher and violin instructor. She has her bachelor's degree and master's degree in music education. Gillian enjoys developing programs and events so that everyone in the community feels supported and has the education they need so that they do not feel limited by their bleeding disorder. Gillian lives in Matthews, NC with her husband Karl and two sons; Riley, who does not have hemophilia, and Noah who has moderate Hemophilia A.

Jamie Strom, Administrative Assistant
    Raleigh, NC
<finance@hemophilia-nc.org>

In addition to her part-time duties at HNC, Jamie is the Operations Manager at the Morrisville Chamber of Commerce. She also does bookkeeping for a few small businesses in her spare time. She has a passion for watching small companies grow and being a part of their successes. Jamie is a rare native of Raleigh, NC, and graduated from Wake Technical Community College in 2011 with an AAS in Accounting. She started with HNC as a volunteer in November 2012. She has also done volunteer service with Meals on Wheels, Triangle Family Services, and other organizations in the Triangle area. Jamie has an nine-year-old son who drives her to be successful and show him that anything is possible. In her spare time she enjoys being involved in extracurricular activities with her son, cross-stitching, reading, and socializing with amazing friends and family.



Main Office
260 Town Hall Dr., Suite A
Morrisville, NC 27560
<info@hemophilia-nc.org>
(800) 990-5557 (toll free)
(919) 319-0014 (direct)
(919) 319-0016 (fax)
Find us on Google Maps.

Unless mentioned otherwise above, no members of the HNC Board of Directors, staff, or their immediate families have any affiliation with industry related to the care and treatment of persons with bleeding disorders; nor are they a member of, or serving on the board of, any other organization within the bleeding disorders community; nor are other family members presently serving on the HNC Board of Directors.