Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
1-800-990-5557 (toll free)
The Carolina Crew, 2017

* Registration is Required

*Download information flier (pdf* 5.1mb) and registration and permission forms (pdf* 783kb) to submit by mail, fax, or email.

Registration Deadline is Monday, June 4th, 2018.

2018 HNC-HSC Teen Retreat

at Camp Canaan
3111 Sand Island Road
Rock Hill, SC 29732

Thursday-Sunday, July 5-8, 2018


For anyone age 13-18 who has a bleeding disorder or has a sister, brother or parent with a bleeding disorder.

Bring a friend!

Transportation Available

Schedule TBA

Come spend a weekend with friends – new & old! We're planning a terrific weekend full of fun activities and sessions that will challenge you, inform you, and inspire you. Share your interests, passion, and ideas about how you can make a difference for yourself and in our community. Our programs will include self-advocacy, learning to share your story, and how to use your voice!

Hemophilia of North Carolina and Hemophilia of South Carolina are offering this program to teen members free of charge. This includes lodging, busing, all meals and activities.

Meet the Nurse

Robin Jones is the South Carolina Hemophilia Treatment Center Nurse Coordinator and a Nurse Navigator for the Children’s Cancer and Blood Disorder Clinic. She has worked in the clinic since receiving her ADN in 2001. Since then, she received her BSN in 2004 and a dual master’s in nursing and health administration in 2015.

Robin has received certification as a pediatric nurse and a pediatric hematology/oncology nurse. She is an instructor for the Association of Pediatric Hematology/Oncology Biotherapy and Chemotherapy Provider course. Robin also provides infusion training for patients and their families. She does this in coordination with the SC Hemophilia Chapter yearly and during Camp Burnt Gin.

Robin has been a staff nurse at Camp Kemo since 2001 and for Camp Burnt Gin since 2010. Camp Kemo is a weeklong camp for children with cancer and Camp Burnt Gin is a camp for children with bleeding disorders. At Camp Burnt Gin, she holds a class at least twice during the week to help the children learn more about their diagnosis as well as train them on how to self-infuse.

Robin is a single mother to three children. She enjoys spending time with her family and crafting. She also enjoys being part of the hemophilia community and attending different events.

Once Upon a Time in Teendom....

In the Kingdom, Queendom, Theedom and Wedom of Teendom, "Once Upon A Time" is how the story still begins, but where it goes from there has a lot to do with teens, and young adults ability to take the reigns of their own experiences and tell their story from a place of confidence. What stories are teens told, by themselves or others, that might get in the way of their bigger story? In this incredibly interactive, funny, and engaging program, GutMonkey will play with the idea of how our story is often the one we need to discover, and guide participants through experiences that will help them find their story, share it in community, and use that story to navigate toward their "Happily Ever After."

Retreat activities will include a high ropes course and lots of time in the pool.

Event Schedule

Transportation Schedule TBA

  • Thursday, July 5
    • 5pm-6pm: Arrive in the evening
    • Dinner
    • Ice breaker and games
  • Friday, July 6
    • All day: Team-building and group sessions led by GutMonkey; free time
    • Campfire and s'mores
  • Saturday, July 7
    • All day: Team-building and group sessions led by GutMonkey; free time
    • Dinner and free time
  • Sunday, July 8
    • Breakfast
    • Review & Suggestions
    • Boxed lunch and noon check-out

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