This event is open to all family members.
Registration Deadline is Wednesday, February 7th, 2018.
SOAR Educational Program and Dinner
The Challenges of Living with a Bleeding Disorder as a Family
Saturday, February 10, 2018 – 7:15pm-9:00pm
Mia Francesca Trattoria
4100 Main at North Hills Street, Suite 115
Raleigh, NC 27609
Hemophilia of North Carolina (HNC) and CSL Behring invite you to a SOAR Dinner on Saturday, February 10 from 7:15pm-9:00pm. This event is open to the entire family, with a focus on women and girls with bleeding disorders.
Kristin Prior will present The Challenges of Living with a Bleeding Disorder as a Family. Living with a bleeding disorder can be a challenge, both for those affected and their caregivers. Kristin will share her insights on how her family has survived and thrived, despite both herself and her son’s bleeding disorders, and how community connections through her local chapter have impacted their lives.
Kristin and her husband live in Vermont, where she works for the Agency of Human Services. Her son Lynden was diagnosed with severe Hemophilia A and Type 1 VWD as an infant, at which time she was tested and diagnosed with Type 1 VWD as well. For Kristin, the diagnosis was a long overdue explanation for the bleeding symptoms she had been dealing with her entire life. Kristin and her family are very active and enjoy camping, hunting, riding horses, and skiing, all while working together as a family to support each other through life’s many challenges, including hemophilia and VWD.
SOAR is an HNC program for women and girls affected with a bleeding disorder, including von Willebrand disease, platelet disorders, rare factor deficiencies, and women affected by hemophilia as either carriers who are symptomatic or officially diagnosed with hemophilia. Our mission is to improve the quality of life for girls and women so they may SOAR to their full potential.
Please consider supporting the SOAR Program by attending the SOAR Wine & Cheese fundraiser, also on February 10, from 4:30PM-7PM at Total Wine & More at the North Hills location. Cost is $45 per person and you must be 21 or over. You can find more information here.
This dinner is being offered free to all HNC members. Because of space constraints, priority will be given to HNC members who are unaffiliated with home care, pharmaceutical, and other related industries. If your group includes more than four persons, please contact the HNC office before registering.
optional: After the educational presentation is complete, attendees will have an opportunity to speak with CSL Behring representatives about products and services they offer to the community.
PLEASE NOTE: Information about this company's products and services is being provided as a public service only. As a non-profit advocate for the bleeding disorders community, Hemophilia of North Carolina does not endorse any treatment products, manufacturers, home care services, or individual medical providers.
Questions? Contact Gillian Schultz, HNC Program Manager, at email@example.com or by phone at 919-272-6000 or toll free at 800-990-5557.