Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
1-800-990-5557 (toll free)
HNC On the Go

Educational Gatherings
Across the State

The HNC On the Go program is a series of special topic presentations and discussions held in different regions of the state. Topics will vary and will include the latest information on treatment and research for the bleeding disorders community. Most sessions will be 2-3 in length, and some will scheduled on a weekday evening.

Due to the limited availability of some programs and speakers, we may offer them only in certain areas. If we present a program outside of your region that you are interested in, please let us know and we will do our best to make the arrangements to offer it in your area.

If you have questions about this program or would like to be involved in the planning of this series for your region, please contact Sue Cowell, HNC Executive Director, at (800) 990-5557 or by email at info@hemophilia-nc.org.

We look forward to seeing you soon!

Recent OTG Events

 

* Thursday, December 17th – 6:00pm to 8:30pm
Dinner and presentation on Pain Management

Mariani's Restaurant
26 Commerce Park PlazaBaxter - There for You
Pembroke, NC
910-521-1212

HNC invites you to join us for a regional On the Go Series meeting on Thursday, December 17th in Pembroke.  Baxter will host their Facts First presentation on Pain Management.

An educational and fun event for people with hemophilia and their families.

 

* Blood Brotherhood Event:
Managing Pain — A discussion managing pain and alternative therapies.

Saturday, September 26, 2009
1:00pm-6:00pm – Dinner provided

The Umstead Hotel & Spa
100 Woodland Pond
Cary, North Carolina 27513

www.theumstead.com
(919) 447-4000

This program will be followed by Poker Night at the hotel from 6:00-8:00pm.


Guest Speakers:

Nancy Roy, MSN, FNP – Pain Management
Nancy is a Senior Clinical Specialist at Baxter BioScience

Warren R. Jewett, ScD – A Guide for Self Hypnosis and other alternatives for managing pain
Warren is a 77-year-old severe hemophiliac. A medical engineer, he has enjoyed a long and productive life much of which he attributes to the support of family, teachers and mentors. He has seen nearly eight decades of changes in the treatment and care for hemophilia patients.

 

* Blood Brotherhood Event:
Mind, Body, and Soul — A discussion about stress managent, working through depression, and living a healthier life style.

Saturday, September 12, 2009
11:00am-2:00pm – Lunch provided

Embassy Suites Concord
5400 John Q. Hammons Drive NW
Concord, NC 28027

www.embassysuitesconcord.com
(704) 455-8200

Guest Speakers:

David S. Rains, President, National Alliance on Mental Illness (NAMI) Charlotte

Donald E. Dossey, PhD, Founder, Stress Management Center/Phobia Institute

After the program participants will be treated to the Food Lion Fall AutoFair at Lowe's Motor Speedway (just minutes from the hotel).

Lowe's Motor Speedway's Food Lion AutoFair is the World's Largest Automotive Extravaganza, offering something to please all car enthusiasts, no matter their particular field of interests. The four-day Food Lion AutoFair includes a car show featuring various makes and models from more than 50 clubs; thousands of parts and memorabilia vendors; unusual attractions and a collector car auction conducted by Tom Mack.

 

* Blood Brotherhood Event:
Teleconference on Dental Care and Resources

Thursday, September 3, 2009 – 7:00pm-8:00pm

Guest Speaker: Janet H. Southerland, DDS, MPH, PhDAssociate Clinical Professor – Chair, Hospital Dentistry / Chief, Oral Medicine – Director, Hospital Dental Clinic – UNC School of Dentistry

 

* Wednesday, August 26th – 6:00pm to 9:00pm
Dinner and presentation on Pain Management

Maggiano's Little Italy
4400 Sharon Road #186Baxter - There for You
Charlotte, NC

HNC invites you to join us for a regional On the Go Series meeting on Wednesday, August 26th in Charlotte.  Baxter will host their Facts First presentation on Pain Management.  The presenter for the program will be Paulette Bryant, MD of the Presbyterian Blume Pediatric Hematology/Oncology Clinic.

All HNC members are welcome to attend.


 

* Saturday May 2, 2009 – 11:00am-2:00pm
Cinco de Mayo Celebration

North Carolina Zoo
Lakeside Picnic Area

4401 Zoo Parkway
Asheboro, NC 27205 – www.nczoo.org

Hemophilia of North Carolina would like to invite our members and families who are affected by a bleeding disorder and friends in the medical community to attend our next program in the HNC On the Go series. Come celebrate Cinco de Mayo with the HNC Latin Union Group and enjoy a presentation on the world of hemophilia.

This is a wonderful opportunity to learn more about the global caring community and celebrate a belated World Hemophilia Day (April 17, 2009) together. Enjoy a very special presentation by Guillermo Sanchez, HNC's Hispanic Liaison, who will share his insight and story about growing up with hemophilia in Mexico.

A special themed lunch will be provided to celebrate our Cinco de Mayo theme along with games and activities for the children. At the conclusion of the meeting, members will receive tickets to tour the NC Zoo and enjoy all the exhibits where you can discover more than 1,100 animals and connect with wildlife from two different continents as you explore 500 acres of exhibits carefully constructed to resemble natural habitats. Walk from Africa's grasslands to North America's Arctic coast!

There is no fee to attend the event and lunch will be provided. Please register by April 26, 2009 to hold your reservation. Here are the information flyer and registration form* in both English and Español

Our thanks to Baxter for their generous grant which made it possible to host this event at no cost to HNC member families.


 

* Thursday, April 30, 2009 – 6:30pm-8:00pm
Dinner and presentation on von Willebrand Disease (vWD)

Charley's at Cotswold Village Shops
274 South Sharon Amity Road
Charlotte, NC 28211
704.367.9500 – www.charleys-charlotte.com

Hemophilia of North Carolina invites our consumer members and friends in the medical community to attend our first program in the HNC On the Go series. Enjoy a dinner and presentation on von Willebrand Disease (vWD). The program will include information about vWD and the recent PBS movie featuring some of our local physicians – Health Body/Healthy Mind: von Willebrand Disease.

This is a wonderful opportunity learn more about vWD which affects up to 1% of the population, both males and females. Our speaker for the evening will be Virginia Kraus, RN, MSN, Medical Science Liaison, Grifols USA. Virginia has had many years of clinical management experience in acute care, home care and disease management implementation. She is a clinical educator and has developed therapy-specific training and been instrumental in the launch of new products and new indications. Virginia has been a liaison for clinical studies for both coagulation and immunology.

There is no fee to attend the event and dinner will be provided. Please register by April 18, 2009 to hold your reservation.

Our thanks to Grifols for their generous sponsorship of this program.


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