Since 1977, serving the people of North Carolina
Family Weekend at Kure Beach
Lots of fun & sun! HNC members and their families joined together for a great weekend at Kure Beach on September 15th and 16th.
The weekend started with a presentation at the NC Aquarium at Fort Fisher. Anne Lowish, RN, CRNI (MedPro Rx) presented "Back to School," a program designed to inform us about how to work with school representatives to best meet the needs of our child. Anne provided valuable tips on better understanding the educational process and the resources that are available. She encouraged families to get involved, become educated on our rights and involve the HTC in building a team approach to educating our children. Following the presentation, everyone enjoyed a quick lunch at the snack bar and some free time to explore the wonderful aquarium.
In the afternoon, we checked into our facility and prepared for a couple hours of fun and sun on the beach. Tim Grams, a Gettin' in the Game athlete and swimmer from Littleton, Colorado (CSL Behring) led the afternoon session. Tim has severe hemophilia A -- the Factor VIII deficiency. He shared his experience growing up and how he overcame challenges to go on to fulfill his dreams. Tim's accomplishments include earning an athletic scholarship, being one of the top-three finishers at the Pacific Collegiate Swimming Conference Championships for three years and co-captain of the Columbine High School Swim Team, where he is the current holder of five school records. Tim encouraged everyone to take charge of their health and strive to do your best. After his inspirational presentation, Tim led the group of kids and their parents to the waters edge where we all had fun playing relay games and taking a dip in the ocean!
We finished our Saturday off with a magical performance by Conley the Magician! He wowed the crowd with his slight of hand tricks and fun performance. The kids enjoyed getting in the act!
On Sunday, Bert Brown (Factor Health Group) presented "Factoring Education." Bert is a single mother of two adult sons with severe hemophilia A and has been an active member of the community for over twenty years. She shared her personal experiences with the audience and encouraged everyone to not allow their illness to define who they are. Bert was accompanied by Enrique Morey (Factor Health Group), who is 24 years old with severe Factor VIII hemophilia. Enrique has worked with the community as an Educational Advocate for the past three years. Although we couldn't get Enrique to don a pirate's suit, he did coordinate the afternoon events for the kids which included a performance by The Shadow Players. The show included an array of pirates performing their knights battle on the deck of our facility.
The weekend finished up with a few hours of free time to enjoy the beautiful weather and take in the sites around Kure Beach.
Hemophilia of North Carolina is grateful to our sponsors who made this weekend possible:
Admirals of the Fleet
Commander of the Fleet
Captain of the Fleet
With Additional Donations From
Kroger — Cary