Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
1-800-990-5557 (toll free)

HNC Family Retreat

Saturday-Monday, September 4-6, 2010
Labor Day Weekend
Trinity Center
Pine Knoll Shores, NC Outer Banks


A Beautiful Labor Day for the HNC Family Retreat

As we approached the date of the HNC Family Retreat we were all watching the path of Hurricane Earl very closely. Fortunately, Mother Nature, smiled upon us with no damage to the area of the retreat and left us with beautiful weather for the 4th Annual HNC Family Retreat over Labor Day weekend in Pine Knoll Shores.

After everyone arrived and was welcomed to the retreat, we enjoyed dinner followed by a Journey Around the World. The program was developed by the World Federation of Hemophilia. Families had a chance to visit seven countries on their flight with ClotNot Airlines. Their destinations included Botswana, Japan, Mexico, Nepal, Peru, Russia and Egypt. At each country the group learned about the culture, fun facts about each one and information about bleeding disorders. While visiting, the groups participated in projects or games that represented each country. For example, in Japan everyone created an origami swan and danced a Cossack dance while in Russia. At the end of each visit, the group's passport was stamped and the flight attendant from each group ushered them off to the next destination. Our thanks to all of the countrymen who did a fantastic job in hosting the groups at their station!

On Sunday there were a variety of programs presented for both the adults and children. Timothy Grams, CSL Behring Gettin' in the Game Athlete, provided some insight into growing up with a bleeding disorder, the challenges he faced and the benefits of making the right choices that enables him to live an active, healthy lifestyle. HNC members Tiffany & Seth Holland along with Kelly Hoots of MedPro Rx then presented information on the KidsBase Program and working with first responders. They provided invaluable information on how to be proactive by registered a child with special needs and providing medical information to emergency responders in your area before an emergency occurs. More information on this program is available through HNC. Yoga for You helped us all relax and practice some techniques for relieving stress along with stretches that can help reduce discomfort. In the afternoon, Audrey Taylor, RN, MSN, FNP, BC, NP from Rush University Medical Center, IL presented information about Living Well with Inhibitors. This presentation included some great information and was followed by good discussion on treatment and options. Our thanks to Novo Nordisk for providing this program to us. Throughout the day, the children participated in a variety of activities including arts & crafts, Laser Tag and Booger Wars on the beach.

The later afternoon was free time to enjoy some of the sites in the area and then we enjoyed a nice dinner at the Beach Pavilion overlooking the ocean and a fun magic show by Adrian the Magician.

On Monday, Faith Hunter and Paul Brayshaw, presented information about the Hemophilia Federation of America's Fit Factor program. The program, which is scheduled to be available on their website within a month, offers services designed to improve health, fitness, and quality of life through regular physical activity and proper nutrition. The program will offer video podcasts, support in tracking physical activity and dietary males plans based on age, weight and medical complications second to bleeding disorders for those unable to afford health club membership or have personal or travel constraints due to physical limitations or rural locations. Nancy Roy, RN from Baxter Bioscience, then spoke about Partnering with you School and shared information on how to communicate with school administrators, teachers, students peers and others. While the adults were in session, the children helped to make some fun, healthy snacks that included Ants on a Log, Luau Sticks and Astronaut Pudding.

Our many thanks to the speakers for their time and information, the Trinity Center and all of our sponsors that made this program a great success. We also would like to thank the families who joined us at the retreat and participated in the programs.


Return to Recent Events page