Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
1-800-990-5557 (toll free)
2018 HNC Annual Meeting

Event is over.

The Hemophilia of North Carolina annual meeting will have child care for all ages (see below for details).

Breakfast, lunch, refreshments, and child care will be available free of charge to the HNC membership through the support of generous grants and contributions from our community.

Traductores estaran disponible en la reunion para asistirle en Español.

HNC 45th Annual Meeting

Saturday, March 10, 2018, 9:00am-5:30pm

Embassy Suites Winston-Salem
460 N. Cherry Street
Winston-Salem, NC 27101

Información en español (pdf/418kb)

Parking will be available in the Cherry Street Parking Garage. You will be provided with a parking voucher when you check-in with HNC.

List of Candidates for the HNC Board of Directors with Voting Instructions.(pdf/935kb)


Go to: First Time Attendees  *  Program Overview   *   Child Care & Youth Programs  *  Afterwards  *  Hotel Information

Did you know that the Hemophilia of North Carolina (HNC) Annual Meeting is the largest educational opportunity within NC to learn about bleeding disorders? The Annual Meeting has been taking place for 44 years, and we look forward to making our 45th larger than ever with your help and support! As always, this is a great opportunity for you to network with fellow members and to hear from the experts on topics relevant to you.

At the end of the day, we'll have raffles and door prizes – lots of them! You must be present to win.

We Are One Community

The bleeding disorders community is diverse. From the different bleeding disorders including hemophilia, von Willebrand disease, platelet disorders, and other rare factor deficiencies, and even our experiences within each of those disorders; to our races, religions, socioeconomic status, gender, and age; we all have different experiences living with a bleeding disorder. Despite all of these differences, there is one thing that brings us together: we are all affected by a bleeding disorder. Together, we can share with each other, learn from each other, and see that despite our differences, we are one community.

Keynote Session: Patchwork Quilt: Bringing our Diverse Community Together – This interactive session will illustrate the importance of individual strengths and perspectives and how they can create a strong and vibrant community. During this session, we see that, just like a patchwork quilt's intricate blended patterns, we are all different, but have a lot in common when we work together in the bleeding disorders community...what a beautiful thing!

Connie Montgomery, presenter – Connie was educated at Francis Marion University and the Medical University of South Carolina. She is married and has two children. Connie is very active in her local community of Pawleys Island, SC. She is a retired business owner and occupational therapist. She also serves on NHF's Steps for Living Taskforce and Cultural Diversity Working Group. Her family is directly impacted by bleeding disorders. Connie has served on countless boards and she has participated in many organizations, namely MUSC’s Family Advisory Committee and several review boards for grants and scholarships, nationally and internationally. She and her son are factor VII deficient.


Together We Advocate – Panel discussion of legislative and local advocacy including perspectives from HNC community members, advocating for access to vital treatments in the bleeding disorders community, and working together with other rare disease states. Together, we can all work together for a common goal.


Emerging Research Trends in Hemophilia Treatment: New Concepts for a Lifelong Disease – Will feature an update on the exciting developments in the bleeding disorders pipeline. Without a doubt, these are times of real change in therapeutic approaches to bleeding disorders.

 

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* First-time Attendees

Once again, we’ll have a special session in the morning for anyone who has never been to one of HNC’s Annual Meetings. Whether you’re new to the community or have just never experienced our Annual Meeting, we encourage you to join us from 8:30am-9:00am for the “First-time Attendee” session. You can grab your breakfast from the buffet and enjoy it with fellow first-timers.

If you are a first-time attendee, please indicate this on your registration application form. HNC will contact you about a hotel room for Friday night and about gas cards to help with your travel costs (these will be handed out at the end of the day).

We’ll have a lot of great information that will help to make your first HNC Annual Meeting more meaningful!

You must register on or before Thursday, February 8, 2018 in order to secure a hotel room.

 

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Program Overview

(Speakers and topics subject to change.)

  • General Sessions
    • Keynote Session: Patchwork Quilt – Connie Montgomery, National Hemophilia Foundation (NHF)
    • Together We Advocate
    • Emerging Trends – Henry Mead, mba, mpa, phd, Director Medical Therapeutic Area Leader Coagulation at CSL Behring
  • Meeting of the Membership
    • Annual and Financial Reports
    • Election of Members of the Board of Directors
  • Breakout Sessions
    • Morning
      • HOPEfor parents of children with bleeding disorders
      • SOARfor women and girls with bleeding disorders
      • Blood Brotherhoodfor adult men with bleeding disorders
      • Spouses, Caregivers, and Loved Ones
    • Afternoon
      • Do You Bleed Like Me?, NHF
      • Standards of Care and Informed Consent, Hemophilia Federation of America (HFA)
      • Inhibitors
      • Latin Union

 

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* Child Care and Youth Programs *

We will have child care for all ages.

We will have child care for infants and toddlers age 3 and under available in breakout rooms near the main session hall.

We will have special programs and fun activities for kids ages 4-8 and 9-12.

* Teen Program (Ages 13-17) *

Teens will participate in Clot Shots, which provides teens the opportunity to explore technology and use it for personal expression. This program will develop team building and collaboration, and teach the teens to develop, produce, and present a video. They will also participate in programming from NHF.


All children and teen activities are optional, so please let us know if you do not plan to take advantage of these wonderful activities.

 

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* Afterwards *

Door Prizes and Raffle Drawings (you must be present to win)

 

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* Hotel Information *

The Embassy Suites Winston-Salem is offering a special room rate of $139. You can make a reservation online, or call the hotel at 336-724-2300 and mention Hemophilia of North Carolina Annual Meeting. You must make your reservation by Friday, February 9 to guarantee this rate.

Sponsorship opportunities are available. Please contact HNC at (800)990-5557 or by email at events@hemophilia-nc.org for more information.