Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
1-800-990-5557 (toll free)
2017 HNC Annual Meeting

Taking Care of YOU
Bleeding Disorders
and Mental Health

* registration is closed.

The Hemophilia of North Carolina annual meeting will have child care for all ages (see below for details).

Breakfast, lunch, refreshments, after-meeting activities, and child care will be available free of charge to the HNC membership through the support of generous grants and contributions from our community.

Traductores estaran disponible en la reunion para asistirle en Español.

HNC 44th Annual Meeting

Saturday, March 4, 2017, 9:00am-5:00pm

Embassy Suites by Hilton
Raleigh-Durham Research Triangle
201 Harrison Oaks Blvd.
Cary, NC 27513


Go to: First Time Attendees  *  Program Overview   *   Child Care & Youth Programs  *  Afterwards  *  Hotel Information

Did you know that the Hemophilia of North Carolina (HNC) Annual Meeting is the largest educational opportunity within NC to learn about bleeding disorders? The Annual Meeting has been taking place for 43 years, and we look forward to making our 44th larger than ever with your help and support! As always, this is a great opportunity for you to network with fellow members and to hear from the experts on topics relevant to you.

At the end of the day, we'll have raffles and door prizes – lots of them! You must be present to win.

Taking Care of YOU

Living with a bleeding disorder takes a lot of care. There are factor infusions and other treatments, doctor appointments and hospital stays, chronic pain, and advocating for yourself, child, or family member: it takes a lot of time and work. But what about taking care of the rest of yourself? Mental health disorders are often stigmatized, yet they affect a large percentage of the population. We take care of the symptoms of a bleeding disorder, why not the symptoms of a mental health disorder?

This year's annual meeting is about just that, taking care of yourself. You will learn about common mental health disorders, how they affect people with bleeding disorders, and strategies to deal with the stresses that come with a bleeding disorder.

Keynote Speaker: Tim Ringgold, MT-BC — Tim is a board certified music therapist. Music has been a part of Tim’s life since he was four years old, performing I Want a Harmonica for Hanukkah. He has been on stage ever since, singing for Pope John Paul II in St. Peter’s Square, at some of the oldest Cathedrals in Europe, and has performed at famous venues including Whiskey, Roxy, and Troubadour in Hollywood, CA, the Fiesta Bowl in Tempe, AZ, and the Hollywood Bowl. Through Tim’s music therapy, he has been able to leverage the power of music to help others deal with pain, stress, attention, or behavior challenges for different conditions including autism, Alzheimer’s, addiction, and cancer. Tim personally knows of the challenges that someone faces raising a child with special needs as he has had to overcome the life and death of his special needs daughter. Through his sessions, Tim seeks to empower parents and those dealing with chronic health conditions with skills to respond to the challenges that occur when dealing with special needs. Tim is a TedX speaker and worked with many organizations including the National Hemophilia Foundation and the World Federation of Hemophilia.

Treatment Options and Emerging TherapiesAlice Ma, MD – Alice D. Ma is a Professor of Medicine and the fellowship director in the Division of Hematology-Oncology at the University of North Carolina School of Medicine in Chapel Hill and is a member of the Harold R. Roberts Comprehensive Hemophilia Treatment Center.  She currently holds the Medical Alumni Loyalty Fund Distinguished Teaching Professorship at UNC.  Dr. Ma received her medical degree from the University of Michigan Medical School in Ann Arbor.  She then completed an internship and residency in medicine and a fellowship in hematology-oncology at the Hospital of the University of Pennsylvania in Philadelphia.

Dr. Ma is a dedicated physician, researcher, teacher, and leader in the field of hematology and coagulation.  She has received numerous teaching awards and authored textbooks and scientific studies, including studies on acquired hemophilia.  Her clinical interests are in bleeding disorders, women’s health, and hematology education.

 

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* First-time Attendees

Once again, we’ll have a special session in the morning for anyone who has never been to one of HNC’s Annual Meetings. Whether you’re new to the community or have just never experienced our Annual Meeting, we encourage you to join us from 8:30am-9:00am for the “First-time Attendee” session. You can grab your breakfast from the buffet and enjoy it with fellow first-timers.

If you are a first-time attendee, please indicate this on your registration application form. HNC will contact you about a hotel room for Friday night and about BP gas cards to help with your travel costs (these will be handed out at the end of the day).

We’ll have a lot of great information that will help to make your first HNC Annual Meeting more meaningful!

You must register on or before Wednesday, February 8, 2017 in order to secure a hotel room.

 

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Program Overview

(Speakers and topics subject to change.)

Hemophilia Federation of America
  • General Sessions
    • Keynote Speaker: Music Therapy for Stress Management – Tim Ringgold, music therapist
    • Treatment Options and Emerging Therapies – Dr. Alice Ma, UNC Hemophilia Treatment Center
    • Mental Health and Chronic Illness
  • Meeting of the Membership
    • Annual and Financial Reports
    • Election of Members of the Board of Directors
  • Breakout Sessions
    • Morning
      • Inhibitors
      • Von Willebrand Disease
      • Latin Union
      • Advocacy
    • Afternoon
      • HOPEfor parents of children with bleeding disorders
      • SOARfor women and girls with bleeding disorders
      • Blood Brotherhoodfor adult men with bleeding disordersMusic Therapy for Pain Management, with Tim Ringgold
      • Spouses, Caregivers, and Loved OnesTaking Care of You

 

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* Child Care and Youth Programs *

We will have child care for all ages. Professional babysitting services will be provided to children 0-12 by Peak City Sitters.

We will have child care for infants and toddlers age 3 and under available in breakout rooms near the main session hall.

We will have programs and activities for kids ages 4-8 and 9-12, also in breakout rooms near the main session hall. Soon we will announce all the fun planned for our favorite little advocates!

* Teen Programs (Ages 13-17) *

Teens will participate in a Leading Edge program where they will develop skills around personal motivation, taking positive risks, goal setting, embracing change when it is difficult, and expanding their comfort zones. This fully interactive program is fun and engaging.


All children and teen activities are optional, so please let us know if you do not plan to take advantage of these wonderful activities.

 

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* Afterwards *

Door Prizes and Raffle Drawings (you must be present to win)

Bowling & Dinner
5:30pm-8:00pm
Buffaloe Lanes
151 High House Road
Cary, NC 27511

 

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* Hotel Information *

The Embassy Suites by Hilton Raleigh-Durham Research Triangle is offering a special room rate of $122 per night. You may reserve your room through the hotel's website, or call the hotel at 919-677-1840 and mention Hemophilia of North Carolina Annual Meeting. You must make your reservation by Friday, February 10 to guarantee this rate.

Sponsorship opportunities are available. Please contact HNC at (800)990-5557 or by email at info@hemophilia-nc.org for more information.


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