Hemophilia of North Carolina

Since 1977, serving the people of North Carolina
affected by bleeding disorders.

260 Town Hall Dr., Suite A, Morrisville, NC 27560
1-800-990-5557 (toll free)
Mad Scientists in Training
(Click on pictures to enlarge.)

HNC Annual Meeting

Saturday May 31, 2008

Lawrence Joel Veterans Memorial Coliseum Complex
Windsor Club
Winston-Salem, NC


On Saturday, May 31, Hemophilia of North Carolina (HNC) celebrated its 35th anniversary at their Annual Meeting in Winston-Salem. 135 people attended the meeting that was held at the Lawrence Joel Veterans Memorial Coliseum Complex.

Members were invited to attend this meeting and join the organization in taking a look at the past, present and future of those affected by bleeding disorders. The agenda for the meeting included a morning panel of nationally and internationally renowned speakers and experts who shared their experiences through different eras. The panel included Harold R. Roberts, MD (Sarah Graham Kenan Professor of Medicine and Pathology at the University of North Carolina at Chapel Hill), Warren Jewett, Sc.D (past president of NHF and current board member of HNC), Roberta Smith (serves on the CSL Behring Advisory Committee and the Advocacy Committee for the Utah Hemophilia Foundation) and Sally Owens (Acting Team Leader of the Prevention Research Team for the Centers for Disease Control Division of Hereditary Blood Disorders). The presentations were outstanding and offered a glimpse into the decades of treatment for bleeding disorders along with a promising future.

After lunch, keynote speaker Jeanne White-Ginder, mother of Ryan White, shared her personal triumphs and tragedies of life with Ryan. One week before Christmas in 1984, Jeanne was told that her son, a hemophiliac, had contracted AIDS from a tainted blood product. Jeanne's presentation was heartfelt and deeply touched many of the members who shared her pain and loss.

The HNC business meeting was then presented and included a review of 2008 programs and services, a financial review, a look to future initiatives and an election of nominees for the 2009 Board of Directors and the appointment of Richard Atwood as the new President for HNC. Richard then presented Matt Barnes, outgoing President, with a plaque honoring his dedication and commitment to HNC.

The afternoon included segments on Bone Health and Inhibitors that were presented by Nursing Education Clinicians Aime Grimsley and Brenda Nielsen from the Hemophilia Treatment Center at UNC-CH. Also presenting was Michael Keogh, the newly appointed Executive Director for the NC Health Insurance Risk Pool (NCHIRP) who described the new high risk pool that is being developed and implemented in January 2009. The afternoon concluded with a passionate speech by Leonard Poe, HNC Vice President and Advocacy Chair, about getting involved and inviting the attendees to HNC's 2008 Legislative Day on June 10th, 2008.

Throughout the day, the children were busy with programs from the Children's Museum of Winston-Salem, Adrian the Magician, The Mad Science Group and a trip to the Game Frog Café.

After the meeting, everyone was treated to tickets to Bowman Gray Raceway for an evening of fun at the races!

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