HNC tiene ahora un nuevo número de teléfono gratuito para el grupo HNC Unión Latina y los miembros que hablan español:
1-855-HNC-LATN
(1-855-462-5286)
(en español solamente / sin cargo).
[HNC now has a new toll-free number for the HNC Latin Union group and Spanish speaking members.]
|
|
|
|
Scenes from
recent events.
|
|
|
Our Mission:
Hemophilia of North Carolina is a non-profit organization dedicated to improving the quality of life of persons affected by bleeding disorders through advocacy, education, promotion of research, and supportive programs and services.
Our Vision is for all persons affected by bleeding disorders to achieve their full potential without barriers or limitations, until a cure is found.
|
|
Headlines
|
|
Advocacy & Healthcare Legislative Updates
- HFA Essential Health Benefits – fact sheets, talking points, helpful links and other resources
- HFA Legislative Action Center
- HFA Friday Update October 5, 2012
- HFA Action Alert September 19, 2012
- HFA Friday Update August 24, 2012
- HFA Friday Update June 29, 2012
- HFA Friday Update June 8, 2012
- HFA Friday Update May 25, 2012
- HFA Friday Update April 27, 2012
- HFA Friday Update April 6, 2012
- HFA Friday Update March 16, 2012
- HFA Friday Update February 24, 2012
- HFA Friday Update February 3, 2012
- HFA Friday Update January 6, 2012
- HFA Friday Update December 2, 2011
- HFA Friday Update November 18, 2011
- HFA Action Alert – HHS Regional Listening Sessions November 3, 2011
- HFA Friday Update September 30, 2011
- HFA Friday Update September 9, 2011
- HFA Friday Update August 19, 2011
- HFA Friday Update July 8, 2011
- HFA Friday Update June 24, 2011
- HFA Friday Update June 10, 2011
- HFA Friday Update May 27, 2011
- Patient Services Inc. (PSI) Government Relations Weekly Updates:
- Health Reform Update – April 1, 2013 (pdf, 84kb)
- Health Reform Update – March 25, 2013 (pdf, 82kb)
- Health Reform Update – March 18, 2013 (pdf, 78kb)
- Health Reform Update – March 11, 2013 (pdf, 90kb)
- Health Reform Update – February 25, 2013 (pdf, 226kb)
- Health Reform Specialty Tier Update – February 25, 2013 (pdf, 96kb)
- Health Reform Update – January 28, 2013 (pdf, 200kb)
- Health Reform Update – January 7, 2013 (pdf, 65kb)
- Health Reform Update – December 24 and 31, 2012 (pdf, 162kb)
- Health Reform Update – ALERT: Fiscal Cliff Deal –January 2, 2013 (pdf, 24kb)
- Health Reform Update – December 3 and 10, 2012 (pdf, 186kb)
- Health Reform Update – November 12, 2012 (pdf, 197kb)
- Health Reform Update – November 5, 2012 (pdf, 212kb)
- Health Reform Update – October 29, 2012 (pdf, 170kb)
- Health Reform Update – October 22, 2012 (pdf, 179kb)
- Health Reform Update – October 15, 2012 (pdf, 175kb)
- Health Reform Update – October 1, 2012 (pdf, 80kb)
- Health Reform Update – September 24, 2012 (pdf, 86kb)
- Health Reform Update – September 10, 2012 (pdf, 218kb)
- Health Reform Update – September 17, 2012 (pdf, 182kb)
- Health Reform Update – July 23, 2012 (pdf, 216kb)
- Health Reform Update – July 9, 2012 (pdf, 191kb)
- Health Reform Update – June 25, 2012 (pdf, 182kb)
- Health Reform Update – June 11, 2012 (pdf, 213kb)
- Health Reform Update – May 28, 2012 (pdf, 213kb)
- Health Reform Update – May 14, 2012 (pdf, 225kb)
- Health Reform Update – May 7, 2012 (pdf, 225kb)
- Health Reform Update – April 9, 2012 (pdf, 229kb)
- Health Reform Update – March 26, 2012 (pdf, 208kb)
- Health Reform Update – March 19, 2012 (pdf, 217kb)
- Health Reform Update – March 12, 2012 (pdf, 188kb)
- Health Reform Update – March 5, 2012 (pdf, 205kb)
- Health Reform Update – February 27, 2012 (pdf, 172kb)
- Health Reform Update – February 6, 2012 (pdf, 209kb)
- Health Reform Update – January 30, 2012 (pdf, 205kb)
- Health Reform Update – January 2, 2012 (pdf, 229kb)
- Health Reform Update – December 19, 2011 (pdf, 188kb)
- Health Reform Alert – December 19, 2011 (pdf, 102kb)
- Health Reform Update – December 12, 2011 (pdf, 209kb)
- Health Reform Update – December 5, 2011 (pdf, 184kb)
- Health Reform Update – November 14, 2011 (pdf, 184kb)
- Health Reform Update – November 7, 2011 (pdf, 197kb)
- Health Reform Update – October 31, 2011 (pdf, 201kb)
- Health Reform Update – October 24, 2011 (pdf, 193kb)
- Health Reform Update – October 10, 2011 (pdf, 242kb)
- Health Reform Update – October 3, 2011 (pdf, 201kb)
- Health Reform Update – September 26, 2011 (pdf, 217kb)
- Health Reform Update – September 19, 2011 (pdf, 230kb)
- Health Reform Update – September 12, 2011 (pdf, 205kb)
- Health Reform Update – August 29, 2011 (pdf, 172kb)
- Health Reform Update – August 22, 2011 (pdf, 229kb)
- Health Reform Update – August 15, 2011 (pdf, 209kb)
- Health Reform Update – August 8, 2011 (pdf, 184kb)
- Health Reform Update – July 25, 2011 (pdf, 183kb)
- Health Reform Update – July 18, 2011 (pdf, 176kb)
- Health Reform Update – July 11, 2011 (pdf, 209kb)
- Health Reform Update – July 4, 2011 (pdf, 205kb)
- Health Reform Bulletin – June 29, 2011 (pdf, 98kb)
- Health Reform Update – June 13, 2011 (pdf, 197kb)
- Health Reform Update – June 6, 2011 (pdf, 250kb)
- Pre-existing Condition Insurance Plan Update – May 7, 2012 (pdf, 90kb)
- Pre-existing Condition Insurance Plan Update – January 2, 2012 (pdf, 94kb)
- Pre-existing Condition Insurance Plan Update – December 19, 2011 (pdf, 94kb)
- Pre-existing Condition Insurance Plan Update – December 5, 2011 (pdf, 123kb)
- Pre-existing Condition Insurance Plan Update – October 24, 2011 (pdf, 94kb)
- Pre-existing Condition Insurance Plan Update – October 10, 2011 (pdf, 94kb)
- Pre-existing Condition Insurance Plan Update – September 12, 2011 (pdf, 127kb)
- Pre-existing Condition Insurance Plan Update – August 22, 2011 (pdf, 169kb)
- Pre-existing Condition Insurance Plan Update – August 8, 2011 (pdf, 111kb)
- Pre-existing Condition Insurance Plan Update – July 11, 2011 (pdf, 127kb)
- Pre-existing Condition Insurance Plan Update – June 13, 2011 (pdf, 131kb)
- Inclusive Health (Federal High Risk Pool) Updates:
- American Public Health Association PHACT Campaign 2011 – Addressing the issues of severe cuts to CDC and APHA funding
…And lots of other exciting activities from the past year … all on our Recent Events page.
|
|
|
|
Who? What? – HNC’s Basic Guide for people newly diagnosed with hemophilia, von Willebrand disease, or other bleeding disorder.
|
|
Victory Junction Gang Camp
June, July, October, 2013
Randleman, NC
|
|
|
|
• Carefree • Rainbow •
June and July, 2013
Stokesdale, Arapahoe
|
|
|
2013 Hemophilia Walk
Kickoff Event
Sunday, August 25, 2013
Durham Bulls Athletic Park
Durham, NC
|
|
|
|
Other Scheduled Events
Additional Information Coming Soon
2013
June 2013
- NC Advisory Board for Bleeding Disorders 2013 Q2 Meeting – June 7
- Latin Union Summer Meeting – Charlotte – June 22
August 2013
- HNC Family Retreat – Pine Knoll Shores – August 11-13
- 2013 Walk Kickoff Event – Durham Bulls Athletic Park – August 25
September 2013
- NC Advisory Board for Bleeding Disorders 2013 Q3 Meeting – September 6
- HNC Adult Retreat – Location TBA – September 7-8
- Blood Brotherhood Program – Wilmington – September 14
- 3rd Latin Union Family Retreat – Raleigh – September 14-15
- Inhibitor Family Camp – Victory Junction Gang Camp – September 28-30
October 2013
- 65th NHF Annual Meeting – Anaheim, CA – October 3-5
- HNC 2013 Hemophilia Walk – Morrisville – October 19
November 2013
- Latin Union (Dia de los muertos) – Winston-Salem – November 2
December 2013
- HNC Holiday Celebration – TBD
- NC Advisory Board for Bleeding Disorders 2013 Q4 Meeting – December 6
2014
April 2013
- HNC 10th Annual Charity Golf Tournament – The Preserve at Jordan Lake – April 25
May 2014
- World Federation of Hemophilia (WFH) World Congress – Melbourne, Australia – May 11-15
Some dates are tentative and subject to change. Additional programs will be listed as scheduled.
|
|
|
|
|
2013 HNC Annual Meeting
|
40 Years of Friendship and Opportunity
Saturday, May 4, 2013, 8:30am-5:00pm
Greensboro Marriott Downtown
|
|
|
April 25-27, 2013
Dallas, TX
Travel Scholarships Available
|
|
HNC’s 9th Annual
Friday, April 12, 2013
The Preserve at Jordan Lake – Chapel Hill, NC
|
|
|
|
|
|
February 27 - March 1, 2013
|
|
|
Over $106,000 Raised!
|
|
|
Saturday, October 20, 2012 – Lake Crabtree, Morrisville, NC
|
|
|
Fourth Annual
Blood Drive
Yard & Bake Sale
Saturday, September 22, 2012
Conover, NC
|
|
September 1-3, 2012
|
|
Trinity Center – Pine Knoll Shores, NC Outer Banks
|
|
YMCA Blue Ridge Assembly
Black Mountain, NC
July 21-23, 2012
|
|
|
|
|
